See my review of the the 3rd Annual Mayo Clinic Humanities in Medicine Symposium in The Badger Journal, Year 3, Volume 1.
It has been a busy couple of months with the book launch, with the biggest news being that Walking the Medicine Wheel was selected as one of Courage & Renewal’s Favorite Courageous Books of 2016!
I did a book event at University of Washington Bookstore on 12/7/16.
Joseph and I did a book reading at BookWorks in Albuquerque, New Mexico 11/10/16 and that was great fun presenting together!
I presented at the 3rd annual Mayo Clinic Humanities in Medicine Symposium with the title, “Walking the Medicine Wheel & the Hero’s Journey: Models of Initiation for Veterans’ Homecoming.” This was on 11/4/16 and I really enjoyed it and I met some great people with good hearts. For instance, I met artist Richard Retter who led us in some creative painting exercises.
I also found a statue outside in the desert garden called, “Transformations of the Shaman.”
In Albuquerque I met a Dine (Navajo) Code talker and visited the small Chapel of Our Lady of Guadalupe that had a stained glass moon phase calendar.
The last big news is that I have a new addition to my job. I have a one day a week appointment at the VA as a Whole Health Education Champion, which will mean I will be conducting training in the larger VA with the Office of Patient Centered Care & Cultural Transformation. I am very excited about this opportunity!
The Badger is an on-line magazine on spirituality and the arts out of Italy published by Antonella Vicini. Antonella has worked with Joseph Rael in the past and I will be writing a quarterly column in the magazine under the title, “Becoming Medicine.”
The book that I have been working on with Joseph Rael (Beautiful Painted Arrow) over the past 2 years just arrived in the mail! It looks like it is still not shipping from Amazon yet, but should be soon as it has shipped from the printer.
Judith Gadd has been working with the publisher, Paulette Millichap of Millichap books and has put up a nice website with 4 videos that my sister, Karen Kopacz, filmed earlier in the year.
My sister, Karen , at Design for the Arts, is in the process of updating my webpage:
I will be setting up some book talks as the next step. In general Joseph will not be traveling much, but we will kick it off together in Albuquerque and will also look at setting something up in Durango. Here is the schedule so far:
November 4, 2016: Mayo Clinic Humanities in Medicine Symposium, Phoenix, AZ
November 10, 2016: Bookworks, Albuquerque, NM (with Joseph)
December 7, 2016: University of Washington Bookstore, Seattle, WA
March 9th, 2017: Minneapolis VA
More news as it is available…
In September of 1997, I had just started my first job out of psychiatric residency at Omaha VA and University of Nebraska. I was keen to continue my scholarly work on creativity, trauma, and healing that I had started with my studies of Jerzy Kosinski and Louis Ferdinand Céline – writers who had lived through war. I envisioned a book examining the lives and writing of a series of authors and I contacted J. G. Ballard for an interview via the post. Life happened and other things came up and I did not get much further on that book idea. (Some of my writing of this era can be found on my webpage in the Coniunctionis column I had written for the on-line journal Mental Contagion). Somewhere along the way, I lost the original handwritten letters of my correspondence with J. G. Ballard, but my sister, Karen, recently gave me back a stack of my writings that I had sent her over the years and these contained a photocopy of the transcribed manuscripts. (Thanks to Shelby Stuart for transcribing from hard copy).
I am belatedly publishing this interview with J. G. Ballard from 1997. My initial questions appear immediately below and following this Ballard’s reply.
Dear Mr. Ballard,
Thank you for your response to my letter concerning an interview on the topic of trauma, literature, and autobiography. I appreciate your suggestion of a postal interview.
In trying to draft a few preliminary questions, I have been struggling to avoid simplistic and potentially leading questions. Rather than an isolated question, I have embedded the question in a context including my own musings and various references. I hope this does not prove too distracting.
What has fascinated me in your writings is your past experience as a child of war and the reappearance of images like the empty swimming pool and the young, male protagonist enthusiastically exploring physical and psychological landscapes in transition. How do you see the relation of these childhood experiences to your later writing? I have also wondered the unanswerable question: would you have been a writer without those experiences during the Japanese occupation?
The later traumatic incident that stands out is the death of your wife as described in The Kindness of Women. I became interested in your works during my clinical years of medical school when I had just finished reading a number of William S. Burroughs’ novels. I was struck by the loss of your wives’ deaths preceding (if my memory serves me) both of your careers as writers. Burroughs commented,
“I am forced to the appalling conclusion that I would never have become a writer but for Joan’s death, and to a realization of the extent to which this event has motivated and formulated my writing. I live with the constant threat of possession, from Control. So the death of Joan brought me in contact with the invader, the Ugly Spirit and maneuvered me into a lifelong struggle, in which I have had no choice except to write my way out,” (Miles, William Burroughs: El Hombre Invisible, 1993, pg. 53).
Could you comment on the early loss of your wife and your career as a writer?
Could you comment on how close to objective reality your books Empire of the Sun and The Kindness of Women are? Stated another way, where do you consider these books on the spectrum of objective history-symbolic representation? Spence, a psychoanalyst, has used the distinction between ‘historical truth’ and ‘narrative truth.’ These two realms of truth describe external and internal realities which are equally valid, although not necessarily identical. I notice that both of my copies of these two books of yours are classified as ‘fiction.’ I spent quite a bit of time on this question in relation to my work on Kosinski. There are great discrepancies between Kosinki’s documented biography and his fictional portrayals of his life which he encouraged to be taken as autobiography. While expressing some form of symbolic truth in his ‘auto-fiction,’ as he called it, he both revealed, disguised, and concealed certain elements of his self.
An observation that has struck me is that many of your books seem quite hopeful in contrast to those of Konsinski and Céline’s which I have been studying. You generally do not portray the despair and disappointment in human nature that they do. Kosinski’s books are filled with existential aloneness, sadism, and brutality, ultimately, he committed suicide. His life and writing could be viewed as being tainted and continually influenced by the events of his childhood, a Nazi victory almost 50 years after the fact. In your books and stories you seem to draw on childhood experiences and images, yet there is more of a sense of hope. Other related questions I have relate to a clinical phenomenon observed in survivors of trauma which Freud called the “repetition compulsion.” His view was that traumatized individuals recreate traumatic interactions in their later relationships in an attempt to have a better outcome. I have not seen this to hold true in many of the individuals with whom I have worked, instead they just seem to add new trauma to old. However, in writing, it does seem possible that some form of reworking and mastering of past experiences could take place. Writing can also be a form of witnessing, which in many theories of recovery from trauma is a necessary step for the individual objectified and isolated by trauma to reconnect with the community. Could you comment on this possible relation between trauma, repetition, and writing as witnessing?
Do you have any thoughts or comments on these interactions in the lives and writings of any of the other authors I am in the process of examining: Céline, Kosinski, Burroughs, Beckett, Woolf?
I have been curious about your portrayals of sexuality in some of your earlier works, such as The Atrocity Exhibition and Crash. These books examine a mode of sexual interaction which is objectified rather than focusing on the subjective or shared emotional experience. These two works seem to explore the potentialities of interaction and to develop modes of relating based on architecture or mechanics (perversions of geometry). To what extent were these personal struggles for you in your life, compared to philosophical explorations? I guess this gets back to the question of historical and narrative truth.
Also of interest is your writing yourself into your own novel in your own automobile accident. (Did you know that Stephen Crane also wrote of fictional situations which he later experienced in his life, such as a boat accident?) Could you comment on this reversal of life imitating art, rather than art imitating life?
Back to the issue of sexuality. Much clinical work has focused on survivors of trauma who have been treated in an objectified manner and who then relate to others in an objectified way, again, a form of repetition or re-enactment of the past. Flipping through The Atrocity Exhibition, I find Dr. Nathan’s comment, “However, you must understand that for Traven science is the ultimate pornography, analytic activity whose aim is to isolate objects or events from their contexts in time and space,” (Re/Search publication, 1990, p. 36). Some of the more enlightened psychiatrists have realized this insight about objectivity and the scientific method, as Stoller has stated, the “false self of psychoanalysis is our jargonized theory,” (Stoller, Observing the Erotic Imagination, 1985, p. 175). The jargon thus become the fetish which is used to objectify the other. This reminds me, in what way did your medical studies influence your writing?
Could you comment on your commitment to Science Fiction? I just finished your book of essays, A User’s Guide to the Millennium, (which is a great title, by the way) and I was struck by the extent that you consider yourself a S-F writer. In the States, Burroughs, Vonnegut, and Ballard are found in the general fiction section. I think that here S-F tends to be looked down on by the “serious” writers. Although, amongst many of my friends, reading S-F was a kind of rite of passage which led up to the journey away from planet “home.”
One last question, what did you think of the film adaptation of Crash? The movie and the novel have been the topic of a number of conversations that I have had with friends.
Well, I guess I did end up asking a few questions. I would like to go through your books in an orderly fashion and perhaps formulate a few more questions if you are willing to tolerate them. I appreciate your willingness to review these pages.
J. G. Ballard’s Reply
Dear Mr. Kopacz,
Happy to answer your questions, and I hope you can read my handwriting [transcribed from original] – I ought to say first that there seems to be an underlying assumption by both you and the received wisdom of the day that all disturbing or violent experience is inherently damaging – that is that experiences such as the death of a spouse or child, death of a parent, the stress of being uprooted from one’s home, the hunger and privations of war, will all leave indelible fracture lines that run through the wounded psyche like a crack through a glass pane, and that even the lightest tap is capable of inflicting irreparable damage – I very much doubt this, although I seem to be opposed to the entire apparatus of 20th century psychotherapy – the fact is that throughout most of their evolution, human beings have been exposed to constant threats and ordeals, both physical and mental, of every kind, and the majority of people recuperate and in due course make a full recovery – when Empire of the Sun was published many people remarked on the appalling hardships I described, as if they were wholly untypical of the lives led by most people of the time – but as I always retort, the experiences I described in Empire of the Sun are far closer to the way in which most people on this planet have always lived, even today – it is we in the suburbanized, welfare-state western democracies who lead untypical lives – if the death of a spouse, child, parent, if hunger, disease, and privation were unusual and deeply damaging, human beings would never have survived. In fact they have enormous powers of recuperation, and when a devastating blow like a child’s loss of a mother, an utterly irreparable disaster according to psychologists such as Bowlby, can be recovered from if the wider family supports and loves the child, and sometimes, I suspect, if it doesn’t – this is not to say that genuinely horrific experiences of a sustained kind – like Nazi death camps and so on – do not inflict lasting damage – of course they do, just as some people will never recover from the wounds of a serious car crash.
I think this preamble probably answers many of your questions, but I will deal with them one at a time –
Childhood experiences and my later writing, and would I have become a writer but for WWII?
I think those experiences were a remarkable education, introducing me to an immensely wider contact with the real world than I would have had if my father had been running a textile company in Manchester – I also saw adults under pressure – an education in itself – in fact I didn’t write Empire of the Sun until I was in my mid-50’s and I think that I had long since come to terms with my experience of the war and risen above it.
Would I have been a writer but for WWII?
Probably, since I was a tremendous day-dreamer and fantasist from an early age (five or six) – however, I think the first-hand experience of the war made me very suspicious of the ‘solidarity’ of everyday life (house and home, the securities of bourgeois life, etc.) and pointed me toward the surrealists – I think I relished the surrealists’ dislocations of the war-time landscape as I experienced them, possibly because I realized that the abandoned hotels and drained swimming pools addressed a deeper truth about the nature of so-called civilized settled life – in part I probably turned to science fiction because it allowed me to inflict just those corrective dislocations on the suffocating docility of English life and all its gentrified ordinariness.
No, my wife’s death, in 1964, came ten years after I began writing, and by then I had published 2 novels, and 2/3 book of short stories.
Trauma, repetition and writing?
I’m not sure that I have ever suffered irreparable trauma – the experience of psychotherapists is not a reliable guide, since they are dealing with a small number of genuinely wounded patients, who perhaps lack the constitutional strengths that allow most people to recover.
Of course the death of my wife was a devastating blow, and to some extent I still mourn her over 30 years later – I think it’s “inexplicable” cruelty (in fact, sadly, mortality often unexpected, is the ocean we swim in) led me to embark on the Atrocity Exhibition, with its attempt to make sense of another inexplicable death, that of J.F.K. – “he wants to kill Kennedy again, but in a way that makes sense,” someone says of the Traven figure.
I’ve never claimed that Empire and Kindness of Women were straight or were largely autobiographical. They are my life as seen through the mirror of the fiction generated by my life – I hope that all my fiction is optimistic, since it is a fiction describing various journeys of psychological fulfillment – my characters, including Jim in Empire, devise strategies that allow them to remythologize themselves – though often their behavior seems superficially paradoxical and even self-defeating – (Kosinski, from what one of his then British publishers told me, was a deeply unhappy man, obsessed with pornography, of which he had a huge collection that he swapped with another wayward Pole, Polanski – but I suspect he would have been deeply unhappy even if WWII had never occurred – I doubt if his suicide was a victory for the Nazis, since he was never interned and the ordeals he witnessed were those of a child – the older concentration camp victims were the true sufferers.
Céline, if I remember, was wounded in the first World War, and this may have acted as a facilitator, revealing a thread of vicious misanthropy that found its most concentrated form in anti-Semitism – a brilliant writer, but deeply nasty man probably from childhood – Burroughs, whom I knew on and off for over 30 years, seemed to me to have entirely created his own world from his imagination, from his homosexuality and the worldview generated by heavy drug use – I never had the sense that any events of his childhood had profoundly influenced him – Woolf, I assume was flawed from the word go, a depressive who might have survived but for the war.
The sexuality portrayed in Atrocity Exhibition and Crash has very little to do with my own. I own no pornography, soon become bored with the films on the “adult” channels in European hotels, and have been lucky enough to have had long and emotionally close relationships with a remarkably few women. On the other hand, I am interested in the ‘idea’ of pornography and how our sexual imaginations are influenced and shaped by the alienating effects of late C20 life – as I keep saying, Crash is a love story, describing how a man and his wife rediscover their love for each other, a fierce love that may be its own [warning? I was unsure of the original handwritten word]. Atrocity is one sustained attempt to make sense of the dislocations of the world.
A User’s Guide – the pieces go back to the 1960’s, when I was still writing s-f, and when I certainly considered myself in part an s-f writer and still had hopes that the genre could escape its juvenile origins and amount to something. But todays -s-f, largely dominated by cinema, is wholly different, a form I suppose of commercial space fantasy – but I’m still interested in science and its handmaiden, technology, and how these play into the hands of our own latent psychopathology. Indeed the normalizing of the psychopathic is the main enterprise on which late C20 mankind has embarked – Crash, the film? A superb and brave adaptation by Cronenberg – I think it will prove to be a landmark film, the Psycho of the 90’s – in the future all films will try to be like Crash —–
This is a copy of the blog post that I published in the member’s blog of the Academy of Integrative Health & Medicine 8/11/16.
By AIHM Member Dave Kopacz
What is a counter-curriculum and why do we need it?
A counter-curriculum is a course of self-study (which includes the study of the self) alongside the technical curriculum for training healthcare professionals.
We need it because something important is missing from the contemporary curriculum of healthcare providers.
I first developed this concept of a counter-curriculum when I was in medical school, actually even before that, back in high school when I realized that there were important areas I needed to be educated in that were outside of what I could learn through schools. My counter-curriculum included the works of Carl Jung, and writings in Zen Buddhism, poetry, literature and mysticism. It included looking at the best of being fully human, as well as the worst, so I had to study the “forgotten histories” of genocides of Native Americans and other marginalized peoples and cultures. I had to study the assumptions of the current facts that were being taught, which led to the philosophy of science and history of medicine as well as of different cultural and historical models of health and illness.
The counter-curriculum is more than reading books, however. In order to be fully human, to counteract the dehumanizing aspects of professional training, in order to be the best doctor and the best human being I could be, I practiced various forms of meditation, yoga, tai chi, martial arts, fencing, going to various gym classes, working out, running, free and easy wandering in the woods with Thoreau and Chuang Tzu in my pack. The counter-curriculum led me to study various forms of healing, of energy, life force, breath and consciousness. It led me to seek out different forms of education and experience. It recently led me to start working with Native American visionary Joseph Rael (Beautiful Painted Arrow), who taught me that we only truly exist in moments when we are raising our consciousness, the rest of the time we are just busy trying to keep everything the same, which is persistence―not existence.
And, finally, the counter-curriculum led me to write my book, Re-humanizing Medicine. And it led me to write this blog post and to encourage you to find your own counter-curriculum, so you can be a whole person, so you can be fully human, so you can truly exist.
Dave Kopacz is a psychiatrist, a founding diplomate of the ABIHM, and is recently certified through the ABoIM. He works in primary care mental health integration at the Puget Sound VA and is on faculty at the University of Washington. He has worked in a number of practice settings in the US and New Zealand. His first book, Re-humanizing Medicine: A Holistic Framework for Transforming Your Self, Your Practice, and the Culture of Medicine develops the concept of a counter-curriculum and presents a guide for being a whole person to treat a whole person. His latest book, with co-author Joseph Rael (Beautiful Painted Arrow), is called Walking the Medicine Wheel: Healing Trauma & PTSD and is due out October 15th, 2016.
Susan MacGregor passed away this past week.
Over the past year Susan and I have exchanged emails as she lived through her “deathing life” and this week she completed that process.
I got to know Susan through our Auckland Holistic Writer’s Group in New Zealand. We met monthly at Time Out Books in Mt Eden in Auckland.
Susan wrote sweet poetry that was very spiritual and she shared this with us in the group, but she dropped out of the group due to some health problems that eventually turned out to be Glioblastoma Multiforme brain cancer. She lived way past the usual time frame for such a tumor and she maintained a positive outlook, although it was clear she had great struggles at times. I hadn’t heard back from her over the past few weeks and a few weeks before that she typed only brief messages and often had many typos in them, a change from her previous communications.
As time went on, I would just send Susan pictures of flowers from our yard and tell her that I was thinking of her.
Please find here some of our final conversations. Even though this is a bit long for a blog post, I will make a long post and include some extra photos…
24 May, 2016 (Susan)
Feeling I am starting to walk in the light now. Last night had these dreams:
Mahmoud & I were sitting in hilly country having a cup of tea together whilst watching a man chisel away at the outer covering of a large boulder, the covering was a greyish white. As he struck away the last chunk of stone there was a brilliant blinding release of amber coloured light. When we looked again we could see the man had found a huge boulder of citrine crystal, it was a massive boulder of very clear bright colour.
A large brilliant white Angel stood in front of me with a sword of white light. It turned the sword point toward the earth then plunged it into the ground. It stood there still holding the hilt of the sword as if on guard.
I was joined by someone in white, emitting light who gave me their hand & invited me to walk with them.
I was thinking about the way you seemed to be able to move above things & continued to be inclusive & responsive to all of us when we were in the writers group. Thus I think the man in the first dream was you. I believe the citrine showed you have a huge power of creativity & will be highly successful in your writing work. I believe it also showed the immense level of protection around you & your ability to rise beyond negativity. Also that citrine’s light was helping me to release my negative energy.
Then the Angel & the offer to walk with a light being. The Angel felt protective, & both felt like signs that my death is not far off. I feel that Angel will be beside me all the way. When I got up today all the negativity was gone.
May 24 (David)
Susan, thank you for sharing such amazing dreams. I have had a very active dream life this week as well and was in New Zealand and US last night.
We all labour through our lives to release the brilliance within us!
Thank you for your kind words and your blessings and being an angel of my work!
May 25 (Susan)
Hope you are making headway with your latest project. Do you keep a dream journal? Maybe that could be an interesting addition to your own biography one day?
I am mindful that if something causes a ripple on my inner calm there is inner work for me to do as otherwise it couldn’t take root in me. That doesn’t mean other’s energy & negative thoughts can’t impact me, nor that their issue is mine, but rather that the negativity can’t cause turmoil or remain in me when there is nothing for it to attach to. The only fully self realized being I believe has walked this earth is Jesus, whom was Christed. Thus though endeavouring to improve myself I find I also need “outside” help.
Love from Susan xx
25 May, 2016 (Susan)
The rose is such a pretty colour & full of new buds, looks like it will be covered in blooms soon.
My function is deteriorating, some difficulty talking, tripping over words, some stuttering. Getting some laughs out of that currently.
Mild nausea, blurred vision, breathlessness, dizziness, fatigue, tremors. Had lots of lovely visitors, 16x peeps over past 6 days. Stopping visitors except family & extended family now as most others have had opportunity to come whilst I could still talk to them.
Poems were sent last Sat. Mail is lot slower than it used to be so probably arrived to destination midway through this week. Hoping there is some merit to them. If not I will ask someone to bind them into a soft cover for family & friends.
In light & love,
Susan x x
25 May, 2016 (David)
Hi Susan, thank you for sharing with me how you are doing. I was thinking about the roses, how each one is so beautiful and bursts into the world, bringing sweet fragrance and beauty (these Angel Face variety roses have a nice scent). And then the flower gradually fades, loses a few petals and then passes away, yet in each individual flower’s passing, new space is created for the other buds that are overflowing with desire to burst forth into the world, giving of themselves and becoming themselves. Even once the flower blossom is gone, though, then the not so beautiful work begins of transforming dead flower into seed – for the rose, it turns into a bright red rose hip berry and becomes beautiful again, until once again, at its ripest, falls from the plant and begins to decay, which allows the seeds of new life to sprout and take root. It seems so beautiful with plants, with people it is a bit harder to stretch the metaphor…
When you say you sent the poems, whom did you send them too?
I have a batch that you sent me some time ago electronically. At first you said you didn’t want them posted as they were copyrighted and you were looking to publish, later, you said to go ahead and publish. I haven’t put any up yet. I’ll do a blog now and put maybe a poem, an update from you and a picture.
Here are some pictures of my little shrine on my desk where I write. I probably have a solid day or two left of editing the manuscript.
May God’s Blessings sustain and surround You,
28 May, 2016 (Susan)
That’s wonderful, again my appreciation & thanks. Metaphor about roses very apt.
My friend from Perth is here, we are having a lot of laughs together. Having known each other from babies we have covered a lot of territory together, I will forward her contact details. Such a special person I think it will be a good link.
Re tripping up on words, in saying goodnite to Mahmoud last nite I said byebye banana, getting stuck on the ‘b’of the byebye his name then becoming banana. A bit like when I called my friend Pam Lamb, then blamed it on her having moved to a farm, lol, but of course it was pressure build up in the language areas of the brain.
You asked about the poetry I have sent it to the NZ poetry Association for review, to see what needs to be done to prep them for sending to a publisher or competitions. I have put copyright on them but don’t mind people reading them just they wouldn’t be able to use them or copy them. I don’t know how this would work for you except for me to give you permission to post them?
1 June, 2016 (Susan)
Feedback arrived from the reviewer, very useful. My “poetry” doesn’t fit into the current definition of poetry & is more akin in layout & content to 19th Century poetry. Not suitable for competitions nor publishers. It fits into rhyme, & bush poetry, but would be more accurately titled selected rhymes.
On the plus side I’m told I have an exceptional gift for rhythm & on the whole not too bad with rhyme. I am excited by the creative challenge of reworking a few of my rhymes into a modern layout & writing style. Not sure how far I’ll get but will just keep it going until I can’t do anymore. Really the most time consuming part is done, which was cataloging the key experiences in some way. Any leftover rhymes can easily be made into a booklet for family. Well worth getting the review.
Recently been told another friend is being investigated for stomach cancer. Same age as me. And my friend Kay, from Perth, who is visiting me daily lost another friend in the past few months from brain cancer & her hubby about 2yrs ago, started in his 40’s. Don’t know if I’m just more cued into things like this now due to my own experience or if its a life stage thing due to age, but seems getting more common. Also wished to ask, my friends hubby was from Polish immigrants The names Pak & Kopacz sound similar? M just arrived.
3 June, 2016 (David)
Hi Susan, editing more today…but it is a beautiful day here! Very summery.
One of the things I like about your poems is the elegant language. I remember Jung said that when the archetypes were speaking, they would often use Victorian language or old formal usages. It gives a kind of timeless quality and stature to language. It is not always a good thing to be accepted by contemporary society, most great artists are not great until time passes….
[Here is one of the first poems that I remember Susan sharing with our Auckland Holistic Writers’ Group in New Zealand]
Misty Lake Magic
Behold, your ethereal waters wrapped around
In a cloak of soft white fairy down
Oh spell-cast land of watery hues
Helpless, I am enraptured by your views
Mossy garlands festoon verdant banks
Sentinel trees guard watery flanks
Ensconced in hues; green, gold and red
Persephone to you has surely fled
Willows, with heads bent in respectful bows
Send tendrils to caress you from their boughs
Whilst gossamer threads of droplets fall
Down soft green leaves into your thrall
Gliding effortlessly, propelled by unseen hands
Snow white swans dance in your watery land
Slicing through mists which then quickly enfold
Them once again in your wispy hold
A hush has fallen, I dare not breathe
Lest this vista before me depart & leave
Or your stillness echo a disquieting sound
Dispersing this magic, exquisitely profound
Should something now disrupt this scene
I would wake violently, as if from a dream
For this vision, disconcertingly surreal
Has me fully lost within its appeal
A myriad soft lights begin to appear
Creating a shimmery stratosphere
A magical mirage before my eyes
Promising some deeper watery surprise
Continuing to look with transfixed gaze
Upon your mystical watery maze
I think I see, in your soft misty light
A fairy citadel of beauty bright
And a glimpse of creatures from another world
Messengers of magic who seemingly herald
The coming of a miracle dawn
In which all the world as this be born
And then the vision begins to fade
Your mossy banks now reveal a glade
The mists enfolding you vanish away
But not my memory of your splendour today
Copyright: 2011, S. D.Mac Gregor
MP’s birthday today! We’re off to one of the local pubs in a bit…
Sending some extra sunshine your way….
12 June, 2016 (David)
I think I commented on the comments of the reviewers in another email, but I think you are from a different time, or perhaps timeless…I think the 19th Century suits you…
11 June, 2016 (Susan)
Following small seizure last Friday am unable to stand or walk without 2x staff. Although previously being averse to having a catheter I have accepted the need & looked for a positive to help me adapt, the positive is I can now drink as much coffee as I like. Previously I limited coffee as it made me need to pee too much & sometimes I wasn’t able to make the toilet in time. Hope that’s not too much information?
Mahmoud stayed over one night this weekend he plans to do that once a week now. I had hoped to make my next birthday, on 25th Aug, but going by my current status predict mid-July which is ok. Have really enjoyed spending time with my life-long friend from Perth, Kay, she has been in every day until recently when she had to go to Matatmata to sort out some things for her mother who is in a Private Hospital there. Kay returns to Perth on the 17th July. We have reminisced at length, laughed, cried, listened to favoured music from our past. I am so lucky to have such a great friend!
Susan x x
11 June 2016 (David)
Hi Susan, you are an unfailing optimist – seizure and then can’t stand, but you are able to drink as much coffee as you like! Well, I hear you on the coffee, I would really miss that if I couldn’t have it. That is not too much information about the catheter. I had to go through medical school to become a psychiatrist.
I am glad you had such a good visit with Kay.
Every day is your birthday now…
I am so happy to see your paintings. Please keep sending them.
I have been bogged down in editing for weeks now. I thought we were getting close with the book after it went through these last edits, but there are still substantial conceptual and structural issues that need to get sorted with the book, so I have been doing long days on the weekends editing…
I did my first presentation that was starting to introduce the book a little bit. I was on a national VA conference call for the Post-Deployment Integrative Care Initiative. My talk was on “Pathways to Moral Healing.” I’ll send the PowerPoint if you can open that…
It is always so nice to hear from you, thank you for sharing yourself and your journey. Mary Pat and I were talking about you this morning and thinking we probably met about 5 years ago. I can’t remember when we started the writing group, I think maybe 2011?
14 June, 2016 (Susan)
Hope you are making headway with the editing? I am doing ok, not suffering, started morphine syrup…. Yuk taste but so lucky to have this option, staggered with panadol for consistent pain relief. Was nervous about taking morphine as never taken much other than panadol or Brufen so didn’t know what to expect. Wouldn’t know except no pain & slept well.
Mahmoud is staying over once a week. It is reassuring to have him with me & he does so many extra little things that make life more comfortable like massaging my feet, legs & bringing me my favourite foods. He is being strong but I see him crying when he thinks no one is watching. It breaks my heart to see his grief but be powerless to help. He, at least, will have the support of my brother whose experience of losing his first wife Ann unexpectedly at 50yrs old has given him a real understanding of the impact things will be having on Mahmoud.
Going back to the morphine I find it is rather weird, as if the Death Eaters from Harry Potter have swooped in & withdrawn life & emotion causing everything to be bland, dampened down, monotone from my norm. Not sure if that is typical. Am wondering how it will impact on the experience of dying.
Have you got someone who can give you help to edit your book?
All the best.
Love & bless,
14 June, 2016 (David)
Hi Susan, that is interesting with the Morphine. I think it can cause some of that emotional blunting for people. A lot of people who get addicted to it use it for that purpose to dull emotional pain as well as physical pain.
I’m sorry for you going through all this, but I see how you are worrying about Mahmoud, too. How difficult this deathing life can be at times. It is quite an initiation process you are going through and it changes those around you as well.
With my book, Mary Pat is doing some of the editing. It is gradually shaping up. How nice it would be for us all to get together again at Time Out Books and talk over our writing and our lives…
Love & Blessings for you
14 June, 2016 (Susan)
Yes indeed re the meetings at Time Out. Those were good times, a great venue plus group of people. Yes it is that blunting I’m not used to. I’m glad I’ve never felt the need to do that to myself deliberately as have been able to experience so much emotionally both ups & downs that it has opened the door to being able to experience more joy, more love, more sensory pleasure.
I’m sure Mary Pat is invaluable help with editing.
As always my best wishes to you and yours.
Love & light.
21 June, 2016 (Susan)
Congratulations on birthing your latest work. Thank you for forwarding to me, what a treasure…I recall Chris James singing peoples’ stories to them surrounding them in a circle of voices, how moving that was for each person, used for healing from physical health issues. Also singing their names along with personal qualities. I used that in some of the group work too within mental health rehabilitation services. It’s a shame I had to hide what I was doing from more traditionally trained workers as results were good. What I hope is that mental health workers move toward a more encompassing approach of methodologies that do produce results even though they may not be mainstream. It seems easier for some people to do that within a cultural context than apply same principles to every, living being, I hope Joseph’s explanation of the principles convinces these people of the universality of the approach. Surely it will.
When added to better outcomes for the veterans you are working with.
19 June, 2016 (Susan)
I’ve had the worst day of all today since being diagnosed, nausea, constipation pain in neck from old neck injury being disturbed by being pulled up the bed etc…Getting into grapes, kiwifruit etc as lactulose is disgusting. My room mate puss is now dubbed Beethoven as keeps rattling his collar bells throughout the night…his Moonlight Sonata perhaps, I would love to try him on keyboards. He is such a treasure.
21 June, 2016 (David)
Hi Susan, sorry to hear it is such a rough time at the Solstice.
Beethoven makes me smile.
I am just finishing the acknowledgements. Do you prefer your surname as:
Mac Gregor (with a space)?
Prayers, love, and lots of sunshine on this longest N Hemisphere day down to your darkest S Hemisphere day…
Glad to hear you are at the other end with editing. The no space option is preferable for my surname “MacGregor,” thanks. Feel much better now no nausea kiwifruit are working. Thank God for Mahmoud who thinks nothing of going all over town to find what I need. Yes interesting I had my darkest day on the darkest day in our hemisphere. Weather is still very mild. Supporting a friend & wife currently, just been diagnosed with stomach lymphoma. 58yrs old, comparatively I’ve had it easy. Had good role models too, a friends hubby used to be in the room opposite me same diagnosis but worse than me couldn’t talk, couldn’t walk or move independently but always kept good sense of humor, loved a joke, & exceptional self management of frustration, I used to watch over him for my friend, it seems his gift to me is in showing that even on dark days I can still be better off than others & can always access fun & laughter to lift stress. Such an exceptional person.
Lts of love,
Susan x x
21 June, 2016 (David)
Hi Susan, glad to hear the nausea is better. Those kiwi fruit are good for everything, eh?
I’m just sending out the manuscript to potential endorsers tonight – it being the Solstice and the Full Moon, seems like a good time for that….
Here is the possibly final version of the manuscript for you to skim if you have the interest and energy, no worries if it is too taxing.
Keep on Susan-ing, as Joseph Rael would say….
24 June, 2016 (Susan)
Getting lots of rain, which I am enjoying being wrapped up warm & cosy. As the song goes… “I love a rainy night, I love a rainy night”… good there are so many things to be enjoyed still as slowly my world is becoming flatter with side effects from meds causing issues plus unpleasant aftertaste so not enjoying food at all…Nausea, constipation dealing with daily but that’s ok they are easy enough to modify with other preparations. Don’t know what to do re the unpleasant taste, except finding hot milky milo [hot chocolate] helps for short while. Picked that up from friend who died from bladder cancer, the only thing she could keep down. Thank you Erina.
12 July, 2016 (David)
Can you see the
Angel of the
17 July, 2016 (David)
Lilly from Madison, Wisconsin
18 July, 2016 (Susan)
Thanku, this is wat M & I call the Susan Lilly as Susan means lilly. M buys these ones for me regularly. Having sum fun he feel bit better each day. xx
20 July, 2016 (Susan)
21 July, 2016 (David)
31 July, 2016 (David)
Sunny here today, will send some your way…
4 August 2016 (David)
I think of you often and send my thoughts and prayers to you…
4 August 2016 (Susan)
Tha k nk youDazvid those thought s &
Prayershelp me through my worst days I am certain I Wouldn’t cope sometimes otherwise.
Love & blesz .xx
[Susan’s emails ended and I received a couple updates from her brother, Rob. He wrote that she passed away peacefully on 23 August, 2016. Susan had said that she hoped to make it to her next birthday of 25 August, which she very nearly did. She lived through what she called her deathing life far longer than is generally predicted for her type of cancer. We’ll close with one of Susan’s poems, which seems very appropriate around her death. I sent Susan a painting a few weeks ago, I’ll also include a photo of that as it was in progress.]
If I can’t hear you
Does it mean you’re not there?
If I can’t see you
Does it mean you’re not near?
If I can’t feel you
Does it mean you are gone?
If I believe I am alone
Would that perception be wrong?
How may I reach you
Without sight, touch, or sound?
Is there another truth
Perhaps, much more profound?
Do we all have a connection
Beyond what appears
To be a continual resurrection
Of endings and tears?
2011, S. D. Mac Gregor
The following is the text of an interview I did for Physio Matters, (member magazine of Physiotherapy New Zealand) August 2016.
FEATURE 22 | PHYSIO MATTERS AUGUST 2016
Treating All of the Patient
Interview by Rhonwyn Newson
David Kopacz, author of the book, Re-humanizing Medicine: A Holistic Framework for Transforming Your Self, Your Practice, and the Culture of Medicine, defines a holistic approach to healthcare means taking into account all human dimensions that influence health and illness.
These include not just the physical, but also the emotional, relational, mental, creative and spiritual dimensions of the person.
“To be holistic is the opposite of being reductionist. In addition to focussing on the physical body, we also are heartcentred, bringing caring and compassion to our work,” Dr Kopacz says.
How can physiotherapists provide a more holistic approach to treating patients?
Dr Kopacz believes clinicians can only provide holistic healthcare by first developing one’s own ‘wholeness’.
“We cannot give to someone else what we have not first developed in ourselves. Healthcare is both an art and a science, although we often forget the art and only focus on the science. If we want to give more compassionate care, we must cultivate our own compassion.”
‘Counter-curriculum of self-care’
Dr Kopacz notes that healthcare workers are often not trained to take care of themselves.
“If we do not care for and replenish ourselves, we end up with professional burn-out, which leads to a loss of caring in healthcare, and ultimately a loss of health for both the healthcare worker and the client.”
The basics are a great place to start – stretching, exercise, regular movement and engagement in life. Proper nutrition and relaxation techniques are helpful too. From there, the concept of mind-body-spirit should be looked at, and this applies to both the clinician and the patient.
According to Dr Kopacz, there are nine dimensions that need to be looked at:
Looking at these nine dimensions gives a holistic view of a person, and each dimension has health benefits. Physiotherapists can individualise a treatment plan by finding out how to support a person to engage all of the dimensions of their health. “We don’t have to be an expert at working with each of these different dimensions, but as healthcare workers, we need to have basic fluency in each dimension.”
Treating more than just an injury
“When people are injured or have a movement disorder, it doesn’t just affect the physical body as a machine – the body also ‘thinks’,” Dr Sandra Bassett, senior lecturer in Physiotherapy at AUT says.
Dr Bassett believes a biopsychosocial healthcare approach means taking into account the beliefs people have about their treatment and their injury.
“It means taking the time to talk to a patient about any limitations to adhering to treatments – what their time and social commitments are.”
From Dr Bassett’s perspective biopsychosocial healthcare is different to providing holistic healthcare.
“It’s about finding out and respecting what a patient thinks. What their commitments are, and how they think their bodies work.”
She also believes patient education is so important. Knowing how the body works, and how treatment will help, means patients are more likely to adhere to their treatment and manage their disability.
“I often hear physios saying, ‘But I’m not a counsellor’, and that’s true,” she says. “However, physiotherapists are well-placed to connect with people, and get them to think about their day and when they might be able to fit in their treatment exercise regime, for example.”
Physios can also place responsibility on a patient to encourage self-efficacy. “Our research shows that when patients take responsibility and ownership of their treatment, they cope much better. Patients feel better about themselves and think more positively.” In this sense, the physiotherapist may act as more of a coach by setting goals, and providing encouragement and support, as well as educating the patient.
Dr Kopacz says an injured person may also suffer from grief over lost physical functionality, anxiety over being re-injured, and even depression around an injury. These emotional and mental elements need to be addressed in order for a person to even have the motivation, and commitment, to doing the exercises that physiotherapists know would help them.
“A key question is asking a patient, ‘What do you want your health for?’ This helps to motivate a person, and individualise their care. It’s not enough to provide information or appeal to a person’s intellect. We need to focus on engendering hope as much as providing an evidence-based physical treatment,” he says.
Although this may seem like a lot to take on in a busy clinical setting, it is a vital component of providing care.
“…really, it comes down to making sure that we are good human beings to each other as well as being a good technician or clinician. Kindness and caring only take a moment and we need to make sure that we make space for that moment to occur.”
Here is another installment on my conversations with Susan as she goes through her “deathing life” with brain cancer. Susan suggested that I share these conversations with the world and it is an honour to be able to have these conversations with her as she lives this new stage in her life, sharing her insight and wisdom.
Sometimes the dates are the same on the posts as we were responding to multiple email threads, sometimes replying to different threads on the same day.
I wonder if living a life focussed on spiritual issues makes the transition to death easier in anyway – maybe it is another spiritual life transition? Here are some more of Susan’s words:
March 7, 2016 (Susan)
Love the photos of Corbin & Sofia. Sending them a BIG energy hug.
Yes, agreed it is challenging for staff to manage all the differing needs of palliative care, dementia care, psychiatric care, & the needs of the frail elderly.
In this facility we are all mixed in together. I believe it would be easier were the facility to have a separate palliative care section with staff given specialist training in that area. In having discussions with management they are of the same opinion.
I am slowly reading through your attachment on stewardship, & have nothing yet to add. It is written beautifully, from the heart using knowledge & personal experience. I still have more of it to read. I haven’t read a lot of Joseph’s part of the book that you are co-writing so will go onto that in the future.
What comes to mind right now in thinking about Stewardship is my lesson about energy & responsibility…when giving clairvoyant readings I used to put a lot of effort/energy into helping the client, including trying to “enlighten” them. In doing this I often found myself exhausted. Ultimately my lesson was simple…it was not my work to enlighten my clients, only to deliver the messages I was instructed to give them. It was the clients own work to seek enlightenment. It was not my exhaustable energy that was needed to deliver guidance & support…all I needed to do was to be a willing conduit actively engaging with the person with right intention, a compassionate heart, & openess to the inexhaustible energy of Source. Having done this I used to find that rather than feeling depleted, I was greatly energised …on all levels.
I have read about the man you mentioned who can move his eyes & lids only [Jean-Dominique Bauby, author of The Diving Bell and the Butterfly]. Remarkable person. Much more fortitude, tolerance of pain, acceptance of incapacity than myself. Things I can’t do now are; drive, dance, play piano, crochet, cook/bake without help, dance, walk barefoot through woods, swim, soak in the sea, stroll through parks or gardens, kayak, walk barefoot in the sand, take full care of a pet, dress myself, shower myself, make my bed, fold or hang my clothes…. etc., etc. Many tasks are full of difficulty. I have, as you said, needed to turn away from the physical, external plus give up much of my independence. It’s been hard to ask for help & relinquish my high standards/preferred ways of doing things. It’s been a major loss to no longer be able to freely move when or where I wish. My fragile energy is drained every day doing basic things e.g. pulling up my pants after toileting. I find myself angry with this new body I’m in, its constant pain & limitations. I look forward to the freedom of relinquishing this tired used up lump of flesh that entraps my spirit.
On another note we recently returned from a road trip up north to my birthplace of Whangarei, first property at Hihi Beach Mangonui & childhood haunts around Kerikeri, Puketi Forest etc. Travel is very uncomfortable & excursions limited to wheelchair friendly areas. However this physical journey felt very important to me, in that I was connecting with key parts of my life then actively letting them go by saying goodbye to that area. Some people believe we leave energy imprints in places, so this was, in a sense, an opportunity to pick up pieces of myself. I had been doing some of this previously by going through photos & memories with Mahmoud, my brother, foster sister & niece. However the physical journey has made this process feel more complete.
Lastly today…I don’t find death morbid. Viewing it that way would seem to convey it is somehow dirty, repugnant, & to be avoided at all costs. The labour of death may not be pretty nor comfortable, but neither is the labour of birthing into this life. It is merely a transition, transformative in its process.
Choosing my own coffin … it was like choosing a new car, exciting & full of anticipation. I have nothing to lose …. I either go to oblivion, being oblivious to all further suffering or go to the home from whence I came.
Love & Bless,
March 7, 2016 (Susan)
I have absolutely no issues at all in your use of content from our email discussions. In fact I consider it an honour & privilege. If any of it can resonate in a helpful way for others that’s good. However my poems are different, in that I have copyright on them. Mahmoud will be their owner when I pass away.
I find I can’t cope with a lot of mental “stuff” now, so often you will find I’m slow to respond.
To answer one of your questions, I have always had one foot in this world & one in the next, being clairvoyant, clairsentient & clairaudient all my life, plus experiencing lucid dreaming, premonitions, recall of some past lives, etc. Things are no different for me now.
In regards Joseph Rael’s statement “we don’t exist” I can’t agree with that totally. Rather I take the perspective that…Energy never dies…in our true form we are light beings/having energy…we do exist but confuse our physical beingness & ego identity with our true self. Our true self, originating from the source of energy & light, doesn’t belong to us in fact, but rather to the “I am” presence, i.e. God. Our purpose then is to return love/ light to our source. We do this by being manifestations of love & light in the world…living ethical, moral lives, & loving our source as much as we love creation plus ourselves. If we confuse only what can be seen, heard or experienced by our baser bodies, for truth, we lose sight of all of the magic & mystery in our existence & become unconscious automatons. Also I believe our soul is a combined vibratory record of all our actions, thoughts, non actions, throughout various lifetimes. Thus our soul survives each lifetime in the form of a collective memory, alongside the myriad other souls, or perhaps merged with all other souls.
When applying principles of vibration to healing, remember each word we utter has a vibratory pattern, plus a positive or negative connection in an individual’s memory. NLP teaches a lot about linguistic principles which can then be included into therapeutic groups & 1:1 therapy.
Talking more along the topic of vibration, I recall one event in which participants were called to list all items hidden beneath a cloth…several participants got many correct & one got all. How is this possible? We are sensing the energy pattern of different objects. Divine principles govern energy & light & I Believe that the divine Being I call God orchestrates these principles to various ends. If we trespass upon these principles we suffer negative consequences.
During one meditation I…meaning my spiritual self…passed through a tunnel toward a door. On opening the door a brilliant light was present & loud sound similar to the rushing of a strong wind. “I” immediately felt myself flying through space & time, hieroglyphs & symbols shooting past at a tremendous speed. I have come to believe that these symbols unlock certain energies & memories. Can I remember the symbols now…no, not consciously, but I later learnt Reiki which uses various symbols in its healing, seeming to reinforce this perspective. The higher our rate of vibration, the more “light” we are. Perhaps the more light we are, the more removed we are from “ego” consciousness & the consequences of a denser reality…I consider that this was how the Buddhist healing techniques freed me from 6yrs of constant pain i.e. by raising my vibratory level. Also Vibration from trumpets, chanting & tempered walking flattened the walls of Jericho, as recorded in the bible. So it is a two edged sword, having power to raise up & to destroy.
When I was 18yrs old the I Am informed me that there are 7x worlds above & 7x worlds below; referring to vibratory realms. Planet earth is in the middle, like the heart of the entire organism. Earth is Jesus’s footstool, he being the divine being supplanted in earthly soil. It is here, due to our own free will that we can increase our light quotient, or decrease it. We influence this by our deeds, words, thoughts, plus not taking action when it is needed.
Well enough from me, I am tired, & perhaps tiring you with these thoughts too.
The very best.
ps, Sorry didn’t mention the trumpets also when referring to Jericho.
March 11, 2016 (Susan)
Hi to all my beautiful friends & family.
I trust & hope you are all ok.
Sorry to say you may not hear much from me from now on.
Following a few lovely days away up north, upon returning to the P.Hospital I had a significant seizure. I am now very weak & will not be able to maintain the Skype chats or emails as previous. We are trying to get to Tauranga for a few days. To assist I am taking dexamethasone. However that will stop on returning. I expect thereafter the seizures & strokes we were told about will take hold.
Please don’t be sad for me, I am happy to leave this disabled body & go to a place beyond the suffering & struggles of this world. I have led a blessed life with the love of good parents, friends, family, & of course Mahmoud, a good career & lots of fun along the way. Thank you all for the memories & support.
When I leave I will be caught in the embrace of angels with a heart full of joy.
Love you always,
[Susan had sent this email, but then some days later began emailing again]
March 18, 2016 (David)
Hi Susan, your thoughts are never tiring to me, always fresh and vibrant. Thanks for sending these details about your spiritual and mystical experiences in life.
I haven’t posted anything yet.
Do you have photo I could include on the blog? Or a suggestion for an image and I’ll find something on the internet.
In the second book Joseph Rael and I are working on, we will focus on how to develop a vibrational or visionary sense, another way of perceiving ourselves and the world. I am looking forward to delving deeper into that. I am also planning a book on Carl Jung and Philip K. Dick’s visions that keeps getting put off. Thank you for sharing your experience of the tunnel of hieroglyphics.
So much of what you say about vibration makes so much sense. Joseph speaks a lot about vibration and called his classic book, Being & Vibration. Physics, too, seems to be moving toward a view of matter as energy and vibration, rather than the solid objects that we perceive as a “table” a “chair.”
I better get working on the talks I am going to be doing in Grand Junction, Colorado in a couple weeks.
March 18, 2016 (David)
Your journey to your roots sounds very important. My last month in New Zealand I took a road trip by myself and went up to Cape Reinga and stopped through Mangonui and Hihi Beach, a beautiful area.
Thank you for your thoughts on Stewardship and for sharing how beautiful your journey is even with all the loss and disability. In your writing I only sense the liveliness of your spirit and not any of the limitations of your body. I like how you describe being a conduit or channel to Source. That is such a sweet feeling to have that flow through.
With the book, I have been contacting people for possible endorsement blurbs on the book. So far I have had a lot of excitement from people.
We had a guest at our Whole Health Class that we run for veterans, this week. Mike Lee, who is from the plains tribes and is an elder of the American Lake VA Sweat Lodge, spoke with us. He did a ceremony in which we turned off the lights and sat facing outward in a circle, with our backs to each other, and then he sang a couple songs and kept time on his drum. It was very moving. He said that our bodies are made of the body of Mother Earth and they are not our own, our spirit moves through them for a while. We breathe in at the start of life and we breathe out at the end of life. It is all just one big breath, moving through some earth, and there really is no such thing as death as the breath and spirit never die. It was very beautiful.
Here are some pictures from my trip to Northland, New Zealand…
Beautiful day here, today, clear, we can see the Olympic mountain range, covered with snow, to the West, and the Cascade Range to the East, not as tall, but also with snow, and to the south the massive bulk of Mt Rainer, a vast snow-covered peak.
My heart and thoughts and prayers are with you,
March 18 2016 (Susan)
Thank you for the photos. You looked very relaxed in the caravan, with hot drink in hand…that’s the life eh?
Having only now read your email the things that come to mind as a picture for the blog could be based on what has been shared…perhaps something with swirling patterns of coloured light, transposed with transparent images of symbols, angels or such.
Speaking more of vibration, I have wondered if we ourselves actively influence vibratory patterns when having visions so that the vision suits a frame of reference that we are familiar with being merely representational, rather than actual, in its appearance. As typically we would not visually perceive vibration itself, & the mind has a tendency to want to organise sensory stimulus into orderly patterns that are familiar. This could be at work in psychosis as well, with the visual hallucinations matching an internal vibratory state & using images that represent that state for the person.
When seeing angels ascending staircases this occurred to me.
In Whangarei one of the Senior Psychiatrists was Sufi, we talked about Sufism & my interest became piqued. Knowing me somewhat he would refer clients to my caseload, as a Mental Health Rehabilitation Therapist, who were reluctant to be treated medically due to the belief they were psychic, not unwell.
My approach here was based on having a foot in each camp i.e. I informed the client that I do believe in illness including illnesses of the neurological functions of the brain, but I also believed in Psychics & knew some personally. In CBT fashion I then invited the client to “scientifically” approach the questions of … am I Psychic or am I unwell, or am I a bit of both? Using DSM we would list on one side of a whiteboard diagnostic criteria, on the other side the phenomenon experiences of what we collectively knew about psychics, drawing from our personal experiences as well as what we had read or found out from others. We then ticked or crossed off items from each list to see what was left. In the few cases I worked with in this manner we typically ended up with some items from each list. The client was then asked to return to the three choices at the start to hypothesize where they might sit along a continuum. End result being the client usually concluded they had a little illness & accepted orthodox treatment knowing that if they wished to do a “planned” withdrawal from meds I would support them in that. With this input they were typically offered much less in the way of medications as they were able to express more clearly to their Psychiatrist only the DSM symptoms they were having & had lost their fears re other phenomenon, having talked these through & being given some “alternative” strategies to manage these if they wished….I hope this illustrates one way mental health workers could include a more wholistic paradigm into mental health diagnosis.
In personal experience with visions, voices, sensations one thing has remained clearly differentiated compared to DSM, i.e. I have never lost awareness of who I am, what is me, what is other, what is “real” what is vision or other experience…. in other words my ego boundaries have remained intact, no psychotic break has occurred. Only once have I been in a situation where I felt controlled by something not me. This happened when I was learning about “channeling”. However I established control again via focusing my mind on a particular piece of music. I never liked “channeling, & never did it again.
Well seems each time you send me something it brings to mind something else. You are definitely a positive catalyst in my life. Thank you.
With best wishes for your continued development of new ways for “being” in healthcare.
Susan MacGregor and I have been continuing our email correspondence and she has been updating me on her process of “deathing life” as she lives with her brain cancer and copes with the changes that brings.
Susan has encouraged me to share her thoughts and words and paintings with others as she continues to grow and change in this “deathing life” process.
These are some of our conversations from February and March and I will include some of Susan’s recent artwork.
Hi Susan, thank you for such beautiful, heart-felt writing. I will draw upon it as I put together these 11 hours of talks to patients, family members and staff around end-of-life decisions and hospice. What can we call it instead of “end-of-life?” I like your term “deathing life.” I have a working title of “Holistic Decision-making Across the Lifespan,” but I am writing about holistic decision-making and death or deathing life. I don’t like the phrase “end of life” so much, as it doesn’t sound active enough.
Can you open a PowerPoint on your computer? I will send you a drafts of the lectures if you are interested….
I am interested in developing something around “death stewardship,” or the dying process as a form of initiation in which the role of family and staff is to support the active, transformative initiation of person in the deathing life phase.
What you have written is so beautiful and full of wisdom. If you would like a public speaking space, I think your words would be an honor to my blog, Being Fully Human, if you would care to have me post them. I don’t want to exploit your deathing life, but I wouldn’t mind mining your wisdom and sharing with others what you would like to share.
Thank you for the gift of yourself!
Thank you again for your appreciation & support.
I am not sure about power point as am using a tablet. Computer is at home but don’t go home much.
I would feel honoured for you to use any of what I send in whatever way you think appropriate. Perhaps if you will bear with me I will write more….
I feel the term “deathing” life conveys a more active involvement in the tasks & processes of leaving this world than other more commonly used terms. And it is also meant to convey that I am still very much living.
I have found the love & support of others key to my being able to move onto the life inventory work mentioned previously, i.e. the non critical, non judgemental acceptance of my life as a whole. I haven’t experienced all of the classical stages of dying as described by Elizabeth Kubler Ross, whether that’s due to my spiritual beliefs or other factors I’m not sure. There has been no anger, no “why me”, no bargaining…so I think it would be false to believe everyone follows that path exactly. There has been sadness, letting go, cherishing, & communing, in a very rich meaningful way. I am approaching my death willing to accept it as a transitional stage of life, & as a part of my life that I can still be actively involved in. The ability to self reflect has been a great bonus, & I believe would be a useful skill for anyone to have. Mindfulness has been a useful tool & having alone time has been essential. I’ve found I have no interest in establishing new bonds, although this still happens naturally. Rather, existing bonds have been my focus & there has been a “turning inward” away from the world. Sometimes this has been hard for Rest Home staff to accept, as their focus is more on maintaining an active, engaged life as people age. Their desire has been to fill my hours up with activities, which I have resisted. Other helpful tasks have involved completing an Advanced Directive, detailing how I would like to be cared for & where I wish to die, plus meeting with a Funeral Director to discuss my wishes (plus inform Mahmoud of what to expect, as there is no embalming of the body etc. in his culture). I have engaged Hospice Services into a “shared care” relationship with the Rest Home Facility as they are the experts in care of the dying. I have chosen my last piece of furniture, i.e. my coffin, where I wish to be buried, & Mahmoud & I have chosen a headstone/a double one. All these things done I am now enjoying the time I have seeing friends, family, having outings & doing short trips in NZ. So that is my life until I am “returned to sender”.
All the very best to you & family.
I have been reading through the attachments you sent when energy allows. I am finding your writing enjoyable, cohesive & easy to read. I am still reading through Joseph’s writings.
So good to hear mention of Joseph Campbell, one of my “heroes” in developing my thinking about spiritual matters. And Martin Buber still rings clearly in my mind from Psychotherapist training. Some of what you speak of reminds me of the concept of the Adam Kadmon within the Kabbalah & gnostic or Pauline Christianity. I certainly relate to the perspective that all is vibration. In fact this reality made it possible for me to be healed via a Buddhist sound technique taught to me at a healing retreat by Chris .This technique enabled me to move beyond 6yrs of constant pain, which I was experiencing due to a ruptured c5 disc. On day 2 of this week long retreat all pain dissappeared, & though subsequent x rays show the old injury still exists with narrowing between the discs, I have never returned to that daily, debilitating pain. Also as a result of the work we did on this retreat I entered such a heightened sensitivity that I experienced the “oneness” you talk about, including hearing the sound that “everything” makes. This retreat spoke directly to my heart, enabling me to release the feelings of longing & sadness I had internalised, engendered by my belief that I was “separated” from God.
Breath travels through matter, creating movement which creates sound. Sound alters vibration & structural patterning. Years ago I experimented with the music of Geoff Clarkson, a Kiwi musician who composes music to aid meditation, relaxation etc. I was Matron of a Rest Home at the time, & found my residents were often fractious, having petty squabbles & altercations. Playing Geoff’s original soundtrack of “Butterfly” via the paged music system had such a profound effect on staff & residents that I later incorporated his CDs & live music sessions with him into my work in Psychosocial & Inpatient rehabilitation.
In looking at memory & PTSD I am reminded of my training in Neuro-Linguistic Programming, which was a 1yr elective at Psychotherapy school. I found a combination of CBT & NLP more effective than CBT alone in getting results with anxiety sufferers.
It gives me joy to read how you are incorporating a peaceful approach towards talking about war & the development of war consciousness. Through Kriya Yoga I was benefited by learning that the way to protest for change is by creating more balance of peaceful, proactive, or positive energy. This is to counterbalance the energy of anger, hate, violence, already in the world. Some of the early “circle dancing” I did, missed this point, with facilitators propagating, “express you anger into the dance”, with no modifying expression to follow.
With discussion of the four directions I am reminded of four Archangels; Michael, Raphael, Uriel, & Gabriel. These vibratory emanations speak to the Mastery of the colour/sound/movement components you mention. I am currently wondering how I can use knowledge about suffering for myself, regarding my physical disability. Though the cancer hasn’t thrown me, the disability has. I am certainly not at peace with that. The only thing I can be grateful to it for, is that it is making it easier to let go of this existence.
As you can see, your writings have moved me to recall these moments within my own life, & some of the rich teachings I have been privileged to discover. Thank you for that.
All the very best, may your work be blessed to produce the results you want.
Kind regards, Susan MacGregor